Sunday, March 10, 2019

OIT update

Wow, I'm so lazy i can't believe I haven't posted since just before we started OIT in July.  In summary, it is going wonderfully.  Since July we have been doing to Dr. Kim's office every 2 weeks to updose.  We discovered a new allergen a few weeks ago that I will post about next.

Dr. Kim and staff are so great.  On our initial updose day, we didn't make it all the way to "solution C".  The 1st part of OIT is small amounts of peanut suspended in Kool-Aid.  We ended up going home on solution B and taking a couple extra weeks to get to the initial starting dose.  This was due to her having some symptoms of itchy mouth/sore throat on the initial day.  The first few doses at home were intense, but went ok.  We quickly learned that we needed to give her a sip of juice box and an apple sauce pouch immediately following the dose, and we've been doing that religiously ever since.

She completed the kool-aid doses in Nov (5 months in) and moved up to powder! Then, in Feb (8 months in), moved up to one whole peanut!!  Just this week she updosed to two whole peanuts (we missed one week due to a snow storm).  She is on schedule to get to the maintenance dose of 8 peanuts per day by the end of May.

She was super skeptical of the whole peanut initially, a new texture, but is now doing wonderfully with them!  Dr. Kim said that once we get to 4g (4 peanuts) we can talk about substitution options (PB, etc.).  Not sure how that will go, I can't imagine her eating 8 whole peanuts every night.  Maybe we can do peanut M&Ms!!

Here she is on her 1 whole peanut day!!  So I'm so excited for her to be a little extra protected starting kindergarten this fall.  Just when i thought we were protected from cross contamination we discovered a new tree nut allergy.  Andi saw a little boy graduate (reaching maintenance dose) from Dr. Kim's a few weeks ago and she is super excited for the appointments and eventually getting to graduation!!


2/6/19

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